October 8, 2024

A woman providing care for her mother who has Alzheimer’s at the end of life gently holds her mother’s hand as she rests in bed.

Caregivers working hand-in-hand with hospice services ensure the best care for someone with Alzheimer’s at the end of life.

End-of-life care is an incredibly personal experience, but when Alzheimer’s disease is involved, it becomes more intricate and emotionally demanding. Unlike other terminal illnesses, dementia’s progression doesn’t have a set pattern, which makes it essential to take a flexible and adaptive approach to care.

Recognizing the Signs That a Loved One With Alzheimer’s Is at the End of Life

In most illnesses, the signs of the end-of-life phase include changes in sleep patterns, appetite, and social behavior, typically emerging two to four months before death. However, with Alzheimer’s, these indicators can appear much earlier, making it difficult to predict when the end is truly near. Watch for these key signs:

  1. Social Withdrawal: Although common throughout the disease, an increase in withdrawal alongside other signs may suggest the person is nearing the end of life.
  2. Increased Sleeping: Long periods of sleep may begin years before the final stages, often serving as an early indicator that the disease is progressing.
  3. Changes in Eating: A refusal to eat or difficulty swallowing can be a strong signal that the body is starting the end-of-life transition.

Steps to Ensure Comfort During This Stage

Once you recognize that your loved one with dementia is nearing the end of life, there are several steps you can take to make their experience as comfortable and meaningful as possible:

  1. Keep a Routine: A steady routine can help reduce confusion and anxiety. Incorporating familiar, simple activities can offer moments of comfort and stability.
  2. Offer Gentle Physical Comfort: Soft blankets, cozy positioning, and soothing touches like massages can ease discomfort. Collaborate with the hospice team to manage any signs of pain effectively.
  3. Early Involvement of Hospice Care: Bringing hospice care in early is key to ensuring your loved one receives specialized end-of-life care. The hospice team can provide support and resources to ensure both the person and their family are well cared for.
  4. Celebrate Small Moments: Even as the end nears, focus on creating joyful memories, no matter how small. These moments can bring peace and strengthen the bond between you and your loved one.
  5. Create a Peaceful Environment: Dim lighting, familiar items, and soothing music can help make the environment feel calming and secure.

How Continuum Can Assist Someone With Alzheimer’s at the End of Life

At Continuum, we are committed to ensuring your loved one’s comfort and dignity in their final days. Here are the ways we can support your family when a loved one with Alzheimer’s is at the end of life:

  1. Coordination with Hospice Providers: We work alongside hospice care providers to ensure seamless, holistic care. Our caregivers help schedule visits and follow care plans to ensure that all needs are met.
  2. Emotional Support: Beyond providing practical care, we offer emotional support to both your loved one and your family, helping reduce feelings of isolation and stress.
  3. Household Assistance: Let us handle the day-to-day tasks like meal preparation, cleaning, and errands, so you can focus on spending meaningful time with your loved one.

We understand how overwhelming and emotional this period can be. At Continuum, we’re here to help. Contact us online or call us at (314) 863-9912 or (636) 861-3336 to learn more about our compassionate, customized care services, available in Chesterfield, Kirkwood, Webster Groves, and nearby regions.

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